On Valentine’s Day weekend 2016, my husband Matthew, sister -Tina, cousin Katie & friends, Marreta, Neil & Stephanie and myself are stripping down to our undies and running 1.5km in the 4th annual Cupid’s Undie Run for Neurofibromatosis (NF) . The energy was contagious in 2015.
The aim of Cupid’s Undie Run is to raise awareness about NF and funds for Childrens Tumour Foundation. Raising funds to continue to research cures and support those affected by NF is vitally important especially for our son Sam, Katie's daughter Holly other children and adults with NF.
Neurofibromatosis can be a devastating condition. It has no cure. I have NF, as does my son. We are not the only ones in our extended family with this condition.
NF is a genetic condition which causes tumours to form on the nerves anywhere in the body at anytime.
Living with a very visible difference can be challenge. You can’t always hide it. Among other things learning issues, disfiguring tumours and extreme nerve pain can also be problematic for those with the condition.
Because NF causes benign tumours to grow anywhere in the body -sometimes they turn malignant and I had a rare malignant (cancer) sarcoma in 2014 and a few benign tumours removed.
So we will running in red undies through Bondi. Our goal is to raise at least $2000 .
On the whole my NF is quite mild in comparison (others in my family have been much more affected) except for the very rare malignant tumour.The Children's Tumour Foundation helps all of us lead better lives.
JOIN our team Sam & Holly ’s Squad if you care !
Could you , would you ?
wear your undies at Bondi Beach
running 1km is within everyone’s reach
on the outside or on your head
Together we will knock 'em dead
Making a donation is simple. We have set up a webpage to make it easy to donate online
Hit the GIVE NOW no amount is too small.
Also SHARE if you can.
PS: The Cupid’s Undie run isn’t till February if you can’t give now – I’ll remind you again in January.